Julianne Whyte, CEO of Amaranth Foundation, joining ABC Canberra with Tom Robert to discuss his life story.

Heavy metal promoter, Tom Roberts, has a heavier story than most.

The 27-year-old father of two from Batemans Bay, NSW has Friedreich’s ataxia, a genetic disorder which progressively damages the nervous system.

It’s a terminal condition that has put Tom in a wheelchair, but in August, Tom celebrated three years of living beyond the life expectancy date given to him by doctors, with an extra big ‘Pitted’: the punk and heavy metal night he organises at Batemans Bay.

Tom shared his story with 666 Mornings, joined by Julianne Whyte, CEO of Amaranth Foundation, a registered nurse and accredited mental health social worker, specialising in grief, loss, trauma and palliative care.

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